Rett Syndrome

Rett syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls, more rarely in boys, and leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily.
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Facebook Connections

  • Rett Syndrome Family Support Forum

    This group is dedicated to families that have a daughter or son with Rett Syndrome. It is a forum for discussion on individual development, problems, treatments & therapies, therapy equipment, events, current research updates, encouragement, support, inspiration, hope and whatever RS brings!

  • Parents of Kids with IBD (Ulcerative Colitis & Chron's)

    This is a group for parents and caregivers ONLY of children that have already been diagnosed with IBD (Ulcerative Colitis or Crohn's Disease).

  • Kids with Chron's

    A compassionate and respectful group for anyone caring for a child with pediatric Chron's disease.

  • Pediatric Chron's Parents

    Virtual Support Group for parents of kids who have been diagnosed with Crohn's Disease.

  • Parents of Children with Chron's of Colitis

    A place to vent, give support and share stories for parents/family/caregivers of children who suffer from IBD. Welcome to the group!